Social health and wellbeing

Living with CF

Firefly Admin March 21, 2023

An overview of the challenges of living with CF across the lifespan, from diagnosis, to CF management, adolescence, mental health, getting a job, and having a family. Read More

School and community education

Firefly Admin March 21, 2023

A comprehensive article that provides an overview of programs, and resources for children with CF, their parents and teachers and school. The article features links to programs, downloadable documents and videos. Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

Lung Foundation Australia

Firefly Admin March 21, 2023

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

Ask Izzy

Firefly Admin March 21, 2023

Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia. Read More

Carer Skills – Social Connections

Firefly Admin March 21, 2023

The Carer Gateway has a range of online skills courses to support wellbeing and understanding of legal responsibilities relating to the caring role. This module focuses on the impact of caring on your relationships with others and provides practical tips to increase social connectedness. Each free online self-paced learning modules takes 20–40 minutes to complete and you can download your responses to questions in the module to use as a resource and reminder. Read More

My Health Record

Paula Woodward March 21, 2023

A national, online health record system that provides a secure summary of your health information. You control what goes into it and you can share it with healthcare professionals. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Firefly Admin March 21, 2023

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

CF Smart

Firefly Admin March 21, 2023

CF Smart is a free resource for teachers and educators to improve understanding of CF care in education settings. It includes access to free e-learning about how to support your student with CF in the classroom as well as downloadable resources. Read More