LWWCF Directory
The LWWCF Directory connects you with relevant, credible and useful resources and supports to empower you to Live Well with CF.
Work on the LWWCF Directory is ongoing and new content is being added all the time. If you think something is missing, please complete the Resource submission Form to tell us about it!
How to use:
- To refine the results displayed, filter the LWWCF Directory categories to find the information, resources and supports that are relevant to your needs.
- Key information is summarised on the content cards displayed, with direct links to the original sources.
Refine results:
Filter the categories below to find information, resources and supports relevant to your needs.
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CF
About CF
Information about CF genes, how you get CF, symptoms, treatment and infection control.
Information about CF genes, how you get CF, symptoms, treatment and infection control.
Formats: ResourceWebpage
Audiences: Adolescent with CFAdult with CFCarerChild with CFDietitianEmployerFamily of a person with CFFriend of a person with CFGPHealth ProfessionalNursing staffOffspring of a person with CFOtherParent of a person with CFPartner of a person with CFPerson with CFSibling of a person with CFSocial workerTeacher
Source: Cystic Fibrosis WA
Social health and wellbeing
Advanced Personnel Management (APM)
APM helps people to find employment, improve their health and wellbeing and participate in the community. Their services help people with injury, illness or…
APM helps people to find employment, improve their health and wellbeing and participate in the community. Their services help people with injury, illness or disability, children and older adults, unemployed people, and those facing hardship or harm.
Formats: OrganisationResourcesSupport ServiceWebpage
Audiences: Adolescent with CFAdult with CFCarerEmployerOtherParent of a person with CFPerson with CF
Source: Advanced Personnel Management
Adherence / Sustaining daily care
Airway Clearance
Factsheets on airway clearance techniques, autogenic drainage, baby PEP, huff and cough, MPD and percussion, physio tips for toddlers, physio routines and organisation, positive…
Factsheets on airway clearance techniques, autogenic drainage, baby PEP, huff and cough, MPD and percussion, physio tips for toddlers, physio routines and organisation, positive expiratory pressure.
Formats: PDFResource
Audiences: Adolescent with CFAdult with CFCarerChild with CFFamily of a person with CFFriend of a person with CFGPHealth ProfessionalNursing staffOffspring of a person with CFParent of a person with CFPartner of a person with CFPerson with CFPhysiotherapistSocial worker
Source: Cystic Fibrosis WA
Creating your support network
Ask Izzy
Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It…
Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia.
Formats: ResourceWebpage
Audiences: Adolescent with CFAdult with CFCarerFamily of a person with CFGPHealth ProfessionalParent of a person with CFPartner of a person with CFPerson with CFSocial worker
Source: Ask Izzy
Managing health and life
Australian Capital Territory Interstate Patient Travel Assistance Scheme (IPTAS)
ACT: IPTAS supports permanent residents of the ACT to access specialist medical treatment and oral surgical health care (excluding routine dental work) outside of…
ACT: IPTAS supports permanent residents of the ACT to access specialist medical treatment and oral surgical health care (excluding routine dental work) outside of the ACT by assisting with travel and accommodation costs.
Formats: Support ServiceWebpage
Audiences: Adolescent with CFAdult with CFCarerChild with CFFamily of a person with CFParent of a person with CFPartner of a person with CFPerson with CF
Source: ACT Government
Creating your support network
Australian Health Directory
A directory that can help you to find a local health professional, general practitioner or health service.
A directory that can help you to find a local health professional, general practitioner or health service.
Formats: OrganisationResourcesWebpage
Audiences: Adolescent with CFAdult with CFCarerChild with CFFamily of a person with CFFriend of a person with CFGPHealth ProfessionalOffspring of a person with CFParent of a person with CFPartner of a person with CFPerson with CFSibling of a person with CF
Source: Australian Health Directory
Healthcare rights
Australian Human Rights Commission
Information on human rights in Australia including children's rights, disability rights, rights for diverse community and health and workplace rights.
Information on human rights in Australia including children’s rights, disability rights, rights for diverse community and health and workplace rights.
Formats: OrganisationResourcesWebpage
Audiences: Adolescent with CFAdult with CFCarerChild with CFFamily of a person with CFFriend of a person with CFGPHealth ProfessionalNursing staffOffspring of a person with CFParent of a person with CFPartner of a person with CFPerson with CFSibling of a person with CFSocial worker
Source: Australian Government
Creating your support network
Australian Psychological Society
Information about psychology support services and how to find a local psychologist in your area.
Information about psychology support services and how to find a local psychologist in your area.
Formats: OrganisationResourcesSupport ServiceWebpage
Audiences: Adolescent with CFAdult with CFCarerChild with CFFamily of a person with CFFriend of a person with CFGPHealth ProfessionalNursing staffOffspring of a person with CFOtherParent of a person with CFPartner of a person with CFPerson with CFPhysiotherapistPsychiatristPsychologistRespiratory physicianSibling of a person with CFSocial worker
Source: Australian Psychological Society
Why develop the LWWCF Directory?
We recognise that a wide range of quality resources and supports already exist for people living with CF. The challenge is knowing where to find up-to-date and quality information when it is needed.
Therefore, rather than creating new materials or duplicate existing resources, LWWCF has started by curating high-quality, relevant, existing materials and providing easy access to these via the LWWCF Directory.
Contact us for more information.
Share Your Resources
Whether you are a person living with CF, a health professional, or represent a health or community organisation, we need your input! No one knows the most useful resources and supports better than you, and we would love to hear from you.
Complete the Resource submission form to share details of useful resources for people living with CF.
Submissions will be reviewed by the LWWCF Steering Group before being added to the LWWCF Directory.
The LWWCF initiative was initiated and funded by Vertex Pharmaceuticals, our foundation sponsor. The LWWCF website, Directory and LWWCF-owned resources (including LWWCF Insights and worksheets) were developed independently via partnerships between the LWWCF Steering Group and The Med Collective, the medical education agency behind LWWCF. External resources and supports shared via the LWWCF Directory have been developed by the individuals and organisations acknowledged in the Directory.
The resources in the LWWCF website and resource directory should be used in consultation with your health care practitioner or mental health professional.