Social health and wellbeing

CFStrong: End of Life Care

Firefly Admin May 8, 2023

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Physical Wellbeing for Adults

Firefly Admin May 8, 2023

Information and resources about physical wellbeing, available on the CFStrong website, including the role for exercise and fitness, and managing CF treatments. CFStrong includes stories from people living with CF who share their experience. Read More

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights: Managing Daily Care (Adherence)

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource addresses the topic of maximising adherence to treatment and managing daily care. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights: Living Well Worksheet

Firefly Admin May 8, 2023

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

Carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

Self-care for carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This fact sheet presents an overview of self-care for carers, including links to further resources and apps. Read More

What is Occupational Therapy?

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This fact sheet presents an overview of occupational therapy. Read More

Mental Health and Wellbeing

Paula Woodward March 23, 2023

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More