Motivation

LWWCF Insights: Living Well Worksheet

Firefly Admin May 8, 2023

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

Lung Foundation Australia

Firefly Admin March 21, 2023

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

Australian Psychological Society

Firefly Admin March 21, 2023

Information about psychology support services and how to find a local psychologist in your area. Read More

Make-A-Wish

Firefly Admin March 21, 2023

Make-A-Wish create life-changing wishes for critically ill children. Wishes complement medical treatment, working to calm, distract and inspire. Wishes deliver both an immediate boost and long lasting effect on the lives of sick kids, their families and communities. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

Cystic Fibrosis Foundation (CFF)

Paula Woodward March 21, 2023

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

CF at school

Firefly Admin March 21, 2023

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More