Living Well With Cystic Fibrosis

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Cystic Fibrosis Queensland (CFQLD)

Cystic Fibrosis Queensland (CFQLD)

CFQLD is the peak body for all people living with CF in Queensland. CFQLD provides support services, advocacy, education, research funding and practical support. They host a range of information and resources on their website about CF and living with CF as well as links to CF Smart (education program) and CFStrong (information for young adults and adults living with CF). Read More

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Cystic Fibrosis Community Care (CFCC)

Cystic Fibrosis Community Care (CFCC)

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More

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Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

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Carer Gateway

Carer Gateway

Carer Gateway provides free services and support for carers. They offer in-person and online peer support groups, tailored support packages, transport services, in-person and online counselling and coaching; online skills courses and access to emergency respite. Read More

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