UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More
Read MoreCarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More
Read MoreCystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More
Read MoreCFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More
Read MoreCFSA is the peak body for all people living with CF in South Australia. CFSA provides access to information, support services, advocacy, education and practical support. They also contribute to national research. They have information about CF and living with CF on their website. Read More
Read More