End-of-life care

CFStrong: A Guide for Health Professionals

Firefly Admin May 8, 2023

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: End of Life Care

Firefly Admin May 8, 2023

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

CF Standards of Care

Firefly Admin March 21, 2023

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

Lung Foundation Australia

Firefly Admin March 21, 2023

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Australian Health Directory

Firefly Admin March 21, 2023

A directory that can help you to find a local health professional, general practitioner or health service. Read More

Department of Health

Firefly Admin March 21, 2023

Information about the health system, health care, health conditions and supports like General Practitioner (GP) Management Plans and Team Care Arrangements that are available to support your health and wellbeing and access to physical and mental health care. Read More

Health Engine

Firefly Admin March 21, 2023

Health Engine is a website that helps people navigate the Australia health care system. It includes searching for general practitioners and other health professionals and services in your local area as well as finding available appointments. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More