CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More
Read MoreUK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More
Read MoreChIPS is a program for young people aged 12–25 with a primary diagnosis of a chronic illness, based at the Royal Children's Hospital in Melbourne (VIC). ChIPS offers peer support programs, camps, socials and leadership opportunities for children and young people across Victoria. Read More
Read MoreThe Ronald McDonald Learning Program assists school-aged children with serious illnesses and injuries to catch up on missed education following treatment and recovery. They provide a suite of educational support services, including therapy sessions and one-on-one tutorials, tailored to students’ individual needs. Read More
Read MoreTLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More
Read MoreCarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More
Read MoreCystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More
Read MoreCFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More
Read MoreCFQLD is the peak body for all people living with CF in Queensland. CFQLD provides support services, advocacy, education, research funding and practical support. They host a range of information and resources on their website about CF and living with CF as well as links to CF Smart (education program) and CFStrong (information for young adults and adults living with CF). Read More
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