Social worker

Comfort kids | For kids

Paula Woodward March 21, 2023

The Comfort Kids For Kids page includes links to resources websites to help children and their families prepare for hospital procedures and hospital stays. There are also a series of coping activities for children aged 7-11 years to assist with anxiety. Read More

Comfort kids | Health professionals

Paula Woodward March 21, 2023

Comfort Kids for health Professionals page provides Workshops, lists guidelines and provides further links to a variety of education resources, podcasts and training activities to support professional development and best practice in procedural pain management. Read More

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Consumer Connect

Paula Woodward March 21, 2023

Consumer Connect is CFA's online platform for people with CF and their support networks to come together for support and knowledge sharing. Registration needed for full access. Read More

CFPhysio

Paula Woodward March 21, 2023

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More

Beam Cystic Fibrosis

Firefly Admin March 21, 2023

Beam is an online resource that provides access to exercise programs tailored to the health needs of people with different health conditions, including a specific program for CF. It includes progressive programs, live and on-demand classes and community and motivational support. Monthly subscription is required after a 2-week free trial. Read More

Make-A-Wish

Firefly Admin March 21, 2023

Make-A-Wish create life-changing wishes for critically ill children. Wishes complement medical treatment, working to calm, distract and inspire. Wishes deliver both an immediate boost and long lasting effect on the lives of sick kids, their families and communities. Read More

Lifeline

Firefly Admin March 21, 2023

Lifeline is a national charity providing access to 24-hour crisis support and suicide prevention services for all Australians experiencing emotional distress. From the website you can connect in a variety of ways to a trained Crisis Supporter, also there are video stories, and resources. Read More