Psychiatrist

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

Mental Health and Wellbeing

Paula Woodward March 23, 2023

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

Living with CF

Firefly Admin March 21, 2023

An overview of life with CF across the lifespan. Read More

The First 12 Months

Paula Woodward March 21, 2023

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

International Committee for Mental Health in CF Guidelines

Paula Woodward March 21, 2023

International guidelines for best-practice mental health care in CF, published in 2016 by the Intenrational Committee for Mental Health in CF, a partnership between Cystic Fibrosis Foundation and European Cystic Fibrosis Society. Provides consensus statements for screening and treating depression and anxiety. This document is primarily for health professionals but of interest to other people living with CF. Read More

Depression, Anxiety and CF

Paula Woodward March 21, 2023

Article from CFA on what the International mental health, depression and anxiety guidelines mean for for people living with CF. Includes a summary of the recommendations from guidelines for people with cystic fibrosis and parents who take care of children with CF to help understand the impact of CF on depression and anxiety. Read More

Life with CF

Firefly Admin March 21, 2023

An brief overview of living with CF from Cystic Fibrosis Australia, with link to CFA's CF Donut health portal. Read More

Mental Health First Aid Toolkit

Firefly Admin March 21, 2023

Trusted Care provides this resource for managing your mental health. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More