Living Well With Cystic Fibrosis

Archive

CFStrong: A Guide for Health Professionals

CFStrong: A Guide for Health Professionals

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Psychosocial Wellbeing for Adults

CFStrong: Psychosocial Wellbeing for Adults

Information and resources about psychosocial wellbeing, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Mental Wellbeing of Loved Ones

CFStrong: Mental Wellbeing of Loved Ones

Information and resources about mental wellbeing for loved ones, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Mental wellbeing for Adults

CFStrong: Mental wellbeing for Adults

Information and resources about mental wellbeing, available on the CFStrong website, including the importance of self care, working with your healthcare team, managing CF treatments, procedural anxiety, and more. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: End of Life Care

CFStrong: End of Life Care

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

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Mental Health

Mental Health

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More

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Infection Control

Infection Control

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

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Carers

Carers

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

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LWWCF Insights: Living Well Worksheet

LWWCF Insights: Living Well Worksheet

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

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LWWCF Insights: Managing Daily Care (Adherence)

LWWCF Insights: Managing Daily Care (Adherence)

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource addresses the topic of maximising adherence to treatment and managing daily care. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

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