Living Well With Cystic Fibrosis

Archive

Transplant

Transplant

Advances in CF treatment have resulted in people living longer healthier lives, however some people will still require an organ transplant to further prolong their lives. This link provides information on lung transplant, transplant support and other available resources. Read More

Read More
Medications and Procedures

Medications and Procedures

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

Read More
Mental Health

Mental Health

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More

Read More
Nutrition

Nutrition

CFWA provides various factsheets for people with CF, carers, and family. This includes information on dietary supplements, eating when unwell, diet and exercise, fat protein and carbohydrates, healthy fats, maintaining health weight, managing nutrition, modulator drugs and diet, nutrition for babies and children, pregnancy and nutrition, post-transplant nutrition and salt and fluids. (Seee Nutrtion section) Read More

Read More
School and day-care

School and day-care

CFWA provides various factsheets for people with CF, carers, and family. This includes information on going to day-care with CF, starting school, going to high school, exercise and sport in school and school camps (see School and daycare section). Read More

Read More
Sexual Health and Fertility

Sexual Health and Fertility

CFWA provides various factsheets for people with CF, carers, and family. This includes information on family planning for CF partners, female and male reproduction, future pregnancies for CF carriers and pregnancy. Read More

Read More
Travel with CF

Travel with CF

CFWA factsheets on travel tips for adults and when travelling with children (see Travel with CF section). Read More

Read More
CF Talk

CF Talk

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More

Read More
CFStrong: Lifestyle

CFStrong: Lifestyle

Information and resources about lifestyle and CF, available on the CFStrong website. This section includes information on hobbies, relationships, school, study, careers and travelling with CF. CFStrong includes stories from people living with CF who share their experience. Read More

Read More
CFStrong: Moving to Adult Care

CFStrong: Moving to Adult Care

Information and resources about moving to adult CF care, available on the CFStrong website, including information about what transitioning means, support available, and commonly asked questions. CFStrong includes stories from people living with CF who share their experience. Read More

Read More