Professions GP - Living Well With Cystic Fibrosis

Carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

CFPhysio – for healthcare professionals

Paula Woodward April 28, 2023

Physiotherapy information and learning management system for healthcare professionals working with individuals with CF. Read More

CFPhysio – for people with CF and caregivers

Paula Woodward April 28, 2023

Information and resources about physiotherapy treatment and management for individuals with CF, parents and caregivers. Read More

Mental Health and Wellbeing

Paula Woodward March 23, 2023

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

General Health

Paula Woodward March 23, 2023

Factsheets on exercise for children and adults, smoking, summertime and CF and toilet training for toddlers. Read More

Airway Clearance

Firefly Admin March 22, 2023

Factsheets on airway clearance techniques, autogenic drainage, baby PEP, huff and cough, MPD and percussion, physio tips for toddlers, physio routines and organisation, positive expiratory pressure. Read More

Living with CF for Parents and Other Carers

Paula Woodward March 21, 2023

An article about emotional health and wellbeing and coping for carers of those with CF. There are downloadable factsheets, and links to find more detailed information or support activities. There are videos which highlight the lived experience of being a carer. Read More

CF Comorbidities

Firefly Admin March 21, 2023

Factsheets on bowel health, bone health, bronchiectasis, CF-related diabetes, continence, dehydration, DIOS, haemoptysis, meconium ileus, pneumothorax and reflux. Read More

About CF

Firefly Admin March 21, 2023

Information about CF genes, how you get CF, symptoms, treatment and infection control. Read More

CF Diagnosis

Firefly Admin March 21, 2023

Information about newborn screening, sweat testing, late diagnosis, supports and other useful resources. Read More