Working with your care team

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

Living with CF for Parents and Other Carers

Paula Woodward March 21, 2023

An article about emotional health and wellbeing and coping for carers of those with CF. There are downloadable factsheets, and links to find more detailed information or support activities. There are videos which highlight the lived experience of being a carer. Read More

Living with CF for Adults

Firefly Admin March 21, 2023

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

Living with CF for Newborns

Paula Woodward March 21, 2023

Information about services, managing CF, the CF clinic and hospital airway clearance, the digestive system and nutrition, medications and procedures, infection and prevention control, emotional wellbeing, day care and summer and CF. Read More

Living with CF for Carers or Partner of Adults

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Carers of Children

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Newly Diagnosed

Paula Woodward March 21, 2023

Information for newly diagnosed families with CF and links to the Baby Steps program for more information. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More

Living with CF

Firefly Admin March 21, 2023

An overview of life with CF across the lifespan. Read More