Living Well With Cystic Fibrosis

Archive

National Disability Insurance Agency

National Disability Insurance Agency

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More

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Medicare

Medicare

Medicare is the Australian system that provides access to a range of health services including lower cost GP visits, prescriptions and free care in public hospitals. You need to register online to access Medicare services. When you turn 15 you can apply for your own Medicare card. Read More

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Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

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Travelling with CF

Travelling with CF

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More

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Cystic Fibrosis Trust

Cystic Fibrosis Trust

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

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Comfort Kids

Comfort Kids

The Comfort Kids Program provides procedural pain management at the Royal Children's Hospital in Melbourne. The aim is to minimise pain, distress and anxiety associated with medical procedures through a multi-modal approach, combining non-pharmacological and pharmacological interventions. Read More

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Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

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CF at work

CF at work

A collection of CFNZ resources for people with CF and employers, including links to A guide to cystic fibrosis for employers, and information about employment law and rights. Read More

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CF at school

CF at school

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More

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Family planning

Family planning

A CFNZ guide for family planning for people with CF and their partners, including links to further information about genetics of CF, and support services. Read More

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