Transition to adult care

CFStrong: Balancing CF and Life

Firefly Admin May 8, 2023

Information and resources about balancing CF and life, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Moving to Adult Care

Firefly Admin May 8, 2023

Information and resources about moving to adult CF care, available on the CFStrong website, including information about what transitioning means, support available, and commonly asked questions. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Changing Clinics

Firefly Admin May 8, 2023

Information and resources about changing CF clinics, available on the CFStrong website, including information about transitioning to adult care as well as moving to a new clinic locally interstate or overseas. CFStrong includes stories from people living with CF who share their experience. Read More

Living with CF for Adults

Firefly Admin March 21, 2023

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

CF Standards of Care

Firefly Admin March 21, 2023

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More

Living with CF

Firefly Admin March 21, 2023

An overview of life with CF across the lifespan. Read More

International Committee for Mental Health in CF Guidelines

Paula Woodward March 21, 2023

International guidelines for best-practice mental health care in CF, published in 2016 by the Intenrational Committee for Mental Health in CF, a partnership between Cystic Fibrosis Foundation and European Cystic Fibrosis Society. Provides consensus statements for screening and treating depression and anxiety. This document is primarily for health professionals but of interest to other people living with CF. Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More