Living Well With Cystic Fibrosis

Archive

Why you need a GP

Why you need a GP

This information covers some of the reasons to have a GP and considerations when choosing a GP for a person with CF. This fact sheet is available via the CFStrong website. Read More

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CFStrong: A Guide for Health Professionals

CFStrong: A Guide for Health Professionals

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Family Planning

CFStrong: Family Planning

Information and resources about family planning, relationships, sexual health and CF, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Moving to Adult Care

CFStrong: Moving to Adult Care

Information and resources about moving to adult CF care, available on the CFStrong website, including information about what transitioning means, support available, and commonly asked questions. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Changing Clinics

CFStrong: Changing Clinics

Information and resources about changing CF clinics, available on the CFStrong website, including information about transitioning to adult care as well as moving to a new clinic locally interstate or overseas. CFStrong includes stories from people living with CF who share their experience. Read More

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Mental Health

Mental Health

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More

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Living with CF for Parents and Other Carers

Living with CF for Parents and Other Carers

An article about emotional health and wellbeing and coping for carers of those with CF. There are downloadable factsheets, and links to find more detailed information or support activities. There are videos which highlight the lived experience of being a carer. Read More

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Living with CF for Children

Living with CF for Children

Information about airway clearance, exercise, nutrition, medications and procedures, infection and prevention control, comorbidities and complications, emotional wellbeing, behavioural support, the CF clinic and hospital, school and day-care, travel and general health. Read More

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Living with CF for Carers or Partner of Adults

Living with CF for Carers or Partner of Adults

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

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CF Standards of Care

CF Standards of Care

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

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