Social health and wellbeing

Cystic Fibrosis Australia (CFA)

Firefly Admin March 21, 2023

CFA is the peak consumer body for people living with CF in Australia. They focus on collaborative programmes, research, funding, partnerships and advocacy. CFA encourages cohesion amongst the state and territory bodies, manages the national CF data registry, leads the national research program, conducts a biennial CF conference and supports the quality improvement program. They have useful information about CF, living with CF, and mental health on their website as well as links to CF-Donut (information about CF and comorbidities) and Consumer Connect. Read More

Cystic Fibrosis New Zealand (CFNZ)

Firefly Admin March 21, 2023

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

Supporting a family with CF

Firefly Admin March 21, 2023

This CFNZ resource is for friends and family who would like to know some practical and emotional ways to support someone they know with a child with CF. This includes a link to A guide to cystic fibrosis for family, whānau and friends. Read More

Parenting a child with CF

Paula Woodward March 21, 2023

This CFNZ webpage provides information and tips for parents of a child with CF. IT also includes a link to the SKIP website and app, which provides valuable resources for parenting children under age 5, including deal with behaviours that most parents find stressful. Read More

Family planning

Firefly Admin March 21, 2023

A CFNZ guide for family planning for people with CF and their partners, including links to further information about genetics of CF, and support services. Read More

CF at school

Firefly Admin March 21, 2023

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More

CF at work

Firefly Admin March 21, 2023

A collection of CFNZ resources for people with CF and employers, including links to A guide to cystic fibrosis for employers, and information about employment law and rights. Read More

Headspace

Paula Woodward March 20, 2023

Headspace is the Australian National Youth Mental Health Foundation which provides mental health information and services to people 12-25 years old. They have information on mental health, wellbeing, navigating life, alcohol and other drugs and work and study. They provide in-person and phone based services throughout Australia. Read More