Living Well With Cystic Fibrosis

Archive

Living with CF for Young People

Living with CF for Young People

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More

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What they don’t tell you

What they don’t tell you

A young person’s guide to sexual and reproductive health issues in CF. Read More

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CFStrong

CFStrong

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

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Spill

Spill

Spill is a sexual health website specifically for young people with CF. It covers topics including puberty, understanding your body, sexual health, sex, fertility and contraception. Read More

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Cystic Fibrosis Trust

Cystic Fibrosis Trust

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

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Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

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Youth Law Australia

Youth Law Australia

Youth Law Australia, also known as Lawstuff, provide free, confidential, online legal advice, assistance and referrals for young people. They provide a range of information on topics such as work, sex and dating, moving out of home and cyberbullying. Read More

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Family planning

Family planning

A CFNZ guide for family planning for people with CF and their partners, including links to further information about genetics of CF, and support services. Read More

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Cystic Fibrosis New Zealand (CFNZ)

Cystic Fibrosis New Zealand (CFNZ)

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

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Cystic Fibrosis South Australia (CFSA)

Cystic Fibrosis South Australia (CFSA)

CFSA is the peak body for all people living with CF in South Australia. CFSA provides access to information, support services, advocacy, education and practical support. They also contribute to national research. They have information about CF and living with CF on their website. Read More

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