School and further study

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

School and community education

Firefly Admin March 21, 2023

A comprehensive article that provides an overview of programs, and resources for children with CF, their parents and teachers and school. The article features links to programs, downloadable documents and videos. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

CF Smart

Firefly Admin March 21, 2023

CF Smart is a free resource for teachers and educators to improve understanding of CF care in education settings. It includes access to free e-learning about how to support your student with CF in the classroom as well as downloadable resources. Read More

Lung Foundation Australia

Firefly Admin March 21, 2023

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

National Disability Insurance Agency

Firefly Admin March 21, 2023

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More

National Disability Coordination Officer Program

Firefly Admin March 21, 2023

NDCO provides information and resources for those interested in accessing and participating in study and work and disclosing a disability as a student or employee. Read More

Missing School

Paula Woodward March 21, 2023

Missing School aims to keep seriously sick children connected to school through information, research, resources and advocacy. Read More

Australian Psychological Society

Firefly Admin March 21, 2023

Information about psychology support services and how to find a local psychologist in your area. Read More

Cystic Fibrosis Trust

Firefly Admin March 21, 2023

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More