Respite care

CFStrong: End of Life Care

Firefly Admin May 8, 2023

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

Self-care for carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This fact sheet presents an overview of self-care for carers, including links to further resources and apps. Read More

Living with CF for Parents and Other Carers

Paula Woodward March 21, 2023

An article about emotional health and wellbeing and coping for carers of those with CF. There are downloadable factsheets, and links to find more detailed information or support activities. There are videos which highlight the lived experience of being a carer. Read More

Living with CF for Carers or Partner of Adults

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Carers of Children

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

CF Standards of Care

Firefly Admin March 21, 2023

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Ask Izzy

Firefly Admin March 21, 2023

Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia. Read More

Lung Foundation Australia

Firefly Admin March 21, 2023

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

National Disability Insurance Agency

Firefly Admin March 21, 2023

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More