Resilience and coping

Living with CF for Children

Paula Woodward March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, childcare and preschool, primary school, travel and concessions and benefits. Read More

The First 12 Months

Paula Woodward March 21, 2023

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

International Committee for Mental Health in CF Guidelines

Paula Woodward March 21, 2023

International guidelines for best-practice mental health care in CF, published in 2016 by the Intenrational Committee for Mental Health in CF, a partnership between Cystic Fibrosis Foundation and European Cystic Fibrosis Society. Provides consensus statements for screening and treating depression and anxiety. This document is primarily for health professionals but of interest to other people living with CF. Read More

Depression, Anxiety and CF

Paula Woodward March 21, 2023

Article from CFA on what the International mental health, depression and anxiety guidelines mean for for people living with CF. Includes a summary of the recommendations from guidelines for people with cystic fibrosis and parents who take care of children with CF to help understand the impact of CF on depression and anxiety. Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

Mental health

Firefly Admin March 21, 2023

A collection of articles, resources and videos about CF, mental health and building resilience. Read More

Mental Health First Aid Toolkit

Firefly Admin March 21, 2023

Trusted Care provides this resource for managing your mental health. Read More

The Australian Centre for Grief and Bereavement

Firefly Admin March 21, 2023

The Australian Centre for Grief and Bereavement provides education, training and services for those working in grief and bereavement as well as support services and a referral service. Read More

Ask Izzy

Firefly Admin March 21, 2023

Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia. Read More

Comfort Kids | Toolkit for families

Paula Woodward March 21, 2023

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More