Resilience and coping

Mental Health and Wellbeing

Paula Woodward March 23, 2023

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

Living with CF for Parents and Other Carers

Paula Woodward March 21, 2023

An article about emotional health and wellbeing and coping for carers of those with CF. There are downloadable factsheets, and links to find more detailed information or support activities. There are videos which highlight the lived experience of being a carer. Read More

Living with CF for Newborns

Paula Woodward March 21, 2023

Information about services, managing CF, the CF clinic and hospital airway clearance, the digestive system and nutrition, medications and procedures, infection and prevention control, emotional wellbeing, day care and summer and CF. Read More

Living with CF for Children

Paula Woodward March 21, 2023

Information about airway clearance, exercise, nutrition, medications and procedures, infection and prevention control, comorbidities and complications, emotional wellbeing, behavioural support, the CF clinic and hospital, school and day-care, travel and general health. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

Living with CF for Adults

Firefly Admin March 21, 2023

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More

Living with CF for Carers or Partner of Adults

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Carers of Children

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Newly Diagnosed

Paula Woodward March 21, 2023

Information for newly diagnosed families with CF and links to the Baby Steps program for more information. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More