CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More
Read MoreCFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More
Read MoreCystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More
Read MoreCarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More
Read MoreSiblings Australia provides support for siblings of children and adults with disability. They provide information, resources and stories focusing on sibling experiences, roles and practical support. They provide peer support services for siblings and one-on-one support for parents and siblings. They also provide professional education and accreditation. (Note, content is general in nature, not specifically focused on CF). Read More
Read MoreHeadspace is the Australian National Youth Mental Health Foundation which provides mental health information and services to people 12-25 years old. They have information on mental health, wellbeing, navigating life, alcohol and other drugs and work and study. They provide in-person and phone based services throughout Australia. Read More
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