Relationships

CF Talk

Firefly Admin May 8, 2023

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More

CFStrong: Family Planning

Firefly Admin May 8, 2023

Information and resources about family planning, relationships, sexual health and CF, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: End of Life Care

Firefly Admin May 8, 2023

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

Carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

LWWCF Insights: Living Well Worksheet

Firefly Admin May 8, 2023

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

Living with CF for Adults

Firefly Admin March 21, 2023

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More