Living Well With Cystic Fibrosis

Archive

CFStrong: Lifestyle

CFStrong: Lifestyle

Information and resources about lifestyle and CF, available on the CFStrong website. This section includes information on hobbies, relationships, school, study, careers and travelling with CF. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Family Planning

CFStrong: Family Planning

Information and resources about family planning, relationships, sexual health and CF, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: End of Life Care

CFStrong: End of Life Care

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

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Carers

Carers

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

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LWWCF Insights: Living Well Worksheet

LWWCF Insights: Living Well Worksheet

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

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LWWCF Insights: Defining Living Well with CF

LWWCF Insights: Defining Living Well with CF

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

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LWWCF Insights Resources

LWWCF Insights Resources

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

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Mental Health and Wellbeing

Mental Health and Wellbeing

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

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Living with CF for Adults

Living with CF for Adults

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More

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Living with CF for Young People

Living with CF for Young People

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

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