Living Well With Cystic Fibrosis

Archive

Travelling with CF

Travelling with CF

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More

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TLC for Kids

TLC for Kids

TLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More

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Chronic Illness Peer Support (ChIPS)

Chronic Illness Peer Support (ChIPS)

ChIPS is a program for young people aged 12–25 with a primary diagnosis of a chronic illness, based at the Royal Children's Hospital in Melbourne (VIC). ChIPS offers peer support programs, camps, socials and leadership opportunities for children and young people across Victoria. Read More

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Cystic Fibrosis Trust

Cystic Fibrosis Trust

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

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Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

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Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

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Beyond Blue

Beyond Blue

Beyond Blue is an Australian mental health foundation that provides information and support for anxiety, depression and suicide. They have online information and a check in to assess your mental health. They provide free 24/7 access to phone/online counsellors, an online peer support community, and a mental health coaching program. Read More

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Kids Help Line

Kids Help Line

Kids Helpline is Australia’s free, confidential 24/7 online and phone counselling service for young people 5-25 years old. Read More

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CarerHelp

CarerHelp

CarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More

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ReachOut

ReachOut

ReachOut helps young people access mental health support. They provide online mental health support, peer support, information and resources for young people, parents, carers and teachers. Read More

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