Living Well With Cystic Fibrosis

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Siblings Australia

Siblings Australia

Siblings Australia provides support for siblings of children and adults with disability. They provide information, resources and stories focusing on sibling experiences, roles and practical support. They provide peer support services for siblings and one-on-one support for parents and siblings. They also provide professional education and accreditation. (Note, content is general in nature, not specifically focused on CF). Read More

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Cystic Fibrosis Tasmania (CFT)

Cystic Fibrosis Tasmania (CFT)

CFT is the peak body for all people living with CF in Tasmania. They provide a range of services including counselling and financial support, educational support and advocacy. Read More

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Cystic Fibrosis Australia (CFA)

Cystic Fibrosis Australia (CFA)

CFA is the peak consumer body for people living with CF in Australia. They focus on collaborative programmes, research, funding, partnerships and advocacy. CFA encourages cohesion amongst the state and territory bodies, manages the national CF data registry, leads the national research program, conducts a biennial CF conference and supports the quality improvement program. They have useful information about CF, living with CF, and mental health on their website as well as links to CF-Donut (information about CF and comorbidities) and Consumer Connect. Read More

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Cystic Fibrosis New Zealand (CFNZ)

Cystic Fibrosis New Zealand (CFNZ)

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

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Supporting a family with CF

Supporting a family with CF

This CFNZ resource is for friends and family who would like to know some practical and emotional ways to support someone they know with a child with CF. This includes a link to A guide to cystic fibrosis for family, whānau and friends. Read More

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Parenting a child with CF

Parenting a child with CF

This CFNZ webpage provides information and tips for parents of a child with CF. IT also includes a link to the SKIP website and app, which provides valuable resources for parenting children under age 5, including deal with behaviours that most parents find stressful. Read More

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Headspace

Headspace

Headspace is the Australian National Youth Mental Health Foundation which provides mental health information and services to people 12-25 years old. They have information on mental health, wellbeing, navigating life, alcohol and other drugs and work and study. They provide in-person and phone based services throughout Australia. Read More

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