Living Well With Cystic Fibrosis

Archive

The First 12 Months

The First 12 Months

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

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The Australian Social Work Clinical Practice Guidelines 2017

The Australian Social Work Clinical Practice Guidelines 2017

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

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Comfort kids | Health professionals

Comfort kids | Health professionals

Comfort Kids for health Professionals page provides Workshops, lists guidelines and provides further links to a variety of education resources, podcasts and training activities to support professional development and best practice in procedural pain management. Read More

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Comfort kids | For kids

Comfort kids | For kids

The Comfort Kids For Kids page includes links to resources websites to help children and their families prepare for hospital procedures and hospital stays. There are also a series of coping activities for children aged 7-11 years to assist with anxiety. Read More

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Comfort Kids | Toolkit for families

Comfort Kids | Toolkit for families

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More

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Starlight Children’s Foundation

Starlight Children’s Foundation

Starlight works alongside clinicians using play, social connection and creativity to support children and young people in hospital to positively change their healthcare experience. Read More

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TLC for Kids

TLC for Kids

TLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More

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Comfort Kids

Comfort Kids

The Comfort Kids Program provides procedural pain management at the Royal Children's Hospital in Melbourne. The aim is to minimise pain, distress and anxiety associated with medical procedures through a multi-modal approach, combining non-pharmacological and pharmacological interventions. Read More

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Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

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Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation (CFF)

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

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