Managing health and life

CF Standards of Care

Firefly Admin March 21, 2023

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

Living with CF for Children

Paula Woodward March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, childcare and preschool, primary school, travel and concessions and benefits. Read More

Living with CF for Carers of Children

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Carers or Partner of Adults

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More

Living with CF for Newly Diagnosed

Paula Woodward March 21, 2023

Information for newly diagnosed families with CF and links to the Baby Steps program for more information. Read More

The First 12 Months

Paula Woodward March 21, 2023

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

Living with CF

Firefly Admin March 21, 2023

An overview of life with CF across the lifespan. Read More

What is CF?

Paula Woodward March 21, 2023

Resources on CF symptoms, causes, diagnosis, treatment and genetic testing. Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More