Living Well With Cystic Fibrosis

Archive

CF Talk

CF Talk

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More

Read More
LWWCF Insights Resources

LWWCF Insights Resources

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

Read More
LWWCF Insights: Defining Living Well with CF

LWWCF Insights: Defining Living Well with CF

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

Read More
LWWCF Insights: Living Well Worksheet

LWWCF Insights: Living Well Worksheet

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

Read More
CFStrong

CFStrong

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Read More
Department of Health

Department of Health

Information about the health system, health care, health conditions and supports like General Practitioner (GP) Management Plans and Team Care Arrangements that are available to support your health and wellbeing and access to physical and mental health care. Read More

Read More
SibChat

SibChat

SibChat is an online community run by, and for, adult siblings of people with disability by Siblings Australia. Read More

Read More
Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

Read More
Chronic Illness Peer Support (ChIPS)

Chronic Illness Peer Support (ChIPS)

ChIPS is a program for young people aged 12–25 with a primary diagnosis of a chronic illness, based at the Royal Children's Hospital in Melbourne (VIC). ChIPS offers peer support programs, camps, socials and leadership opportunities for children and young people across Victoria. Read More

Read More
Siblings Australia

Siblings Australia

Siblings Australia provides support for siblings of children and adults with disability. They provide information, resources and stories focusing on sibling experiences, roles and practical support. They provide peer support services for siblings and one-on-one support for parents and siblings. They also provide professional education and accreditation. (Note, content is general in nature, not specifically focused on CF). Read More

Read More