Healthcare rights

CFStrong: End of Life Care

Firefly Admin May 8, 2023

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

CF Standards of Care

Paula Woodward March 21, 2023

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

Lung Foundation Australia

Firefly Admin March 21, 2023

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

Australian Human Rights Commission

Firefly Admin March 21, 2023

Information on human rights in Australia including children's rights, disability rights, rights for diverse community and health and workplace rights. Read More

Department of Health

Firefly Admin March 21, 2023

Information about the health system, health care, health conditions and supports like General Practitioner (GP) Management Plans and Team Care Arrangements that are available to support your health and wellbeing and access to physical and mental health care. Read More

Medicare

Firefly Admin March 21, 2023

Medicare is the Australian system that provides access to a range of health services including lower cost GP visits, prescriptions and free care in public hospitals. You need to register online to access Medicare services. When you turn 15 you can apply for your own Medicare card. Read More

National Disability Insurance Agency

Firefly Admin March 21, 2023

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

Cystic Fibrosis Foundation (CFF)

Paula Woodward March 21, 2023

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More