Living Well With Cystic Fibrosis

Archive

What is CF?

What is CF?

An overview of CF, who gets CF, treatment, diagnosis and carrier screening. Read More

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CFStrong

CFStrong

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

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Lung Foundation Australia

Lung Foundation Australia

The Lung Foundation of Australia provides services, information and resources, webinars and a service directory for people with lung disease. Read More

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Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

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CF Baby Steps

CF Baby Steps

CF Baby Steps provides a collection of resources for families of newborn babies following CF diagnosis. It has been developed through collaboration between CFCC, the Royal Children's Hospital and Monash Children's Hospital, in conjunction with parents. It includes articles on a range of topics, parents sharing their experience, and information about emotional support. Read More

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CFPhysio

CFPhysio

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More

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Beam Cystic Fibrosis

Beam Cystic Fibrosis

Beam is an online resource that provides access to exercise programs tailored to the health needs of people with different health conditions, including a specific program for CF. It includes progressive programs, live and on-demand classes and community and motivational support. Monthly subscription is required after a 2-week free trial. Read More

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National Disability Insurance Agency

National Disability Insurance Agency

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More

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Cystic Fibrosis Trust

Cystic Fibrosis Trust

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

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Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

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