Diagnosis

CFStrong: A Guide for Health Professionals

Firefly Admin May 8, 2023

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Family Planning

Firefly Admin May 8, 2023

Information and resources about family planning, relationships, sexual health and CF, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

Sexual Health and Fertility

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on family planning for CF partners, female and male reproduction, future pregnancies for CF carriers and pregnancy. Read More

Carrier Screening and Diagnosis

Firefly Admin March 21, 2023

Factsheets on carrier screening and sweat testing. Read More

Living with CF for Newborns

Paula Woodward March 21, 2023

Information about services, managing CF, the CF clinic and hospital airway clearance, the digestive system and nutrition, medications and procedures, infection and prevention control, emotional wellbeing, day care and summer and CF. Read More

Genetic Carrier Screening

Firefly Admin March 21, 2023

Information about carrier screening, what it is and useful contacts. Read More

CF Diagnosis

Firefly Admin March 21, 2023

Information about newborn screening, sweat testing, late diagnosis, supports and other useful resources. Read More

About CF

Firefly Admin March 21, 2023

Information about CF genes, how you get CF, symptoms, treatment and infection control. Read More

The First 12 Months

Paula Woodward March 21, 2023

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

CF Standards of Care

Firefly Admin March 21, 2023

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More