Creating your support network

Australian Psychological Society

Firefly Admin March 21, 2023

Information about psychology support services and how to find a local psychologist in your area. Read More

Health Engine

Firefly Admin March 21, 2023

Health Engine is a website that helps people navigate the Australia health care system. It includes searching for general practitioners and other health professionals and services in your local area as well as finding available appointments. Read More

Queensland Community Access Scheme (QCSS)

Firefly Admin March 21, 2023

QCSS provides support services that maintain and promote independence and quality of life for individuals with a disability, chronic health condition or mental health condition who do not meet eligibility for the NDIS. Read More

Trusted Care

Firefly Admin March 21, 2023

Trusted Care, a subsidiary of Cystic Fibrosis Queensland, is an NDIS provider, supporting to people with CF to allow them to live an ordinary life. Their plan management and support services are available to all Australians who qualify for NDIS support. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

CarerHelp

Paula Woodward March 21, 2023

CarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More

Parenting a child with CF

Paula Woodward March 21, 2023

This CFNZ webpage provides information and tips for parents of a child with CF. IT also includes a link to the SKIP website and app, which provides valuable resources for parenting children under age 5, including deal with behaviours that most parents find stressful. Read More

Cystic Fibrosis New Zealand (CFNZ)

Firefly Admin March 21, 2023

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

Cystic Fibrosis Australia (CFA)

Firefly Admin March 21, 2023

CFA is the peak consumer body for people living with CF in Australia. They focus on collaborative programmes, research, funding, partnerships and advocacy. CFA encourages cohesion amongst the state and territory bodies, manages the national CF data registry, leads the national research program, conducts a biennial CF conference and supports the quality improvement program. They have useful information about CF, living with CF, and mental health on their website as well as links to CF-Donut (information about CF and comorbidities) and Consumer Connect. Read More

Cystic Fibrosis South Australia (CFSA)

Firefly Admin March 21, 2023

CFSA is the peak body for all people living with CF in South Australia. CFSA provides access to information, support services, advocacy, education and practical support. They also contribute to national research. They have information about CF and living with CF on their website. Read More