Creating your support network

Carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights: Managing Daily Care (Adherence)

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource addresses the topic of maximising adherence to treatment and managing daily care. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights: Living Well Worksheet

Firefly Admin May 8, 2023

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

Self-care for carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This fact sheet presents an overview of self-care for carers, including links to further resources and apps. Read More

What is Occupational Therapy?

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This fact sheet presents an overview of occupational therapy. Read More

Living with CF for Parents and Other Carers

Paula Woodward March 21, 2023

An article about emotional health and wellbeing and coping for carers of those with CF. There are downloadable factsheets, and links to find more detailed information or support activities. There are videos which highlight the lived experience of being a carer. Read More

Carrier Screening and Diagnosis

Firefly Admin March 21, 2023

Factsheets on carrier screening and sweat testing. Read More

Living with CF for Adults

Firefly Admin March 21, 2023

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More