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Living Well With Cystic Fibrosis

Archive

Why you need a GP

Why you need a GP

Firefly Admin May 8, 2023

This information covers some of the reasons to have a GP and considerations when choosing a GP for a person with CF. This fact sheet is available via the CFStrong website. Read More

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CFStrong: Wellbeing for Young People

CFStrong: Wellbeing for Young People

Firefly Admin May 8, 2023

Information and resources about wellbeing, available on the CFStrong website, including mental and social health, managing treatments, relationships and self-advocacy. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Balancing CF and Life

CFStrong: Balancing CF and Life

Firefly Admin May 8, 2023

Information and resources about balancing CF and life, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Mental Wellbeing of Loved Ones

CFStrong: Mental Wellbeing of Loved Ones

Firefly Admin May 8, 2023

Information and resources about mental wellbeing for loved ones, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Mental wellbeing for Adults

CFStrong: Mental wellbeing for Adults

Firefly Admin May 8, 2023

Information and resources about mental wellbeing, available on the CFStrong website, including the importance of self care, working with your healthcare team, managing CF treatments, procedural anxiety, and more. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: End of Life Care

CFStrong: End of Life Care

Firefly Admin May 8, 2023

Information and resources about end of life care, available on the CFStrong website, including information about care options and planning, superannuation and wills. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Moving to Adult Care

CFStrong: Moving to Adult Care

Firefly Admin May 8, 2023

Information and resources about moving to adult CF care, available on the CFStrong website, including information about what transitioning means, support available, and commonly asked questions. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Changing Clinics

CFStrong: Changing Clinics

Firefly Admin May 8, 2023

Information and resources about changing CF clinics, available on the CFStrong website, including information about transitioning to adult care as well as moving to a new clinic locally interstate or overseas. CFStrong includes stories from people living with CF who share their experience. Read More

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CF Talk

CF Talk

Firefly Admin May 8, 2023

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More

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Hospital

Hospital

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on first hospital admission, and managing procedures in babies, toddlers and children (see Hospital section). Links to other resources are also provided. Read More

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