CF – Page 5 – Living Well With Cystic Fibrosis

Comfort Kids | Toolkit for families

Paula Woodward March 21, 2023

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More

Comfort kids | For kids

Paula Woodward March 21, 2023

The Comfort Kids For Kids page includes links to resources websites to help children and their families prepare for hospital procedures and hospital stays. There are also a series of coping activities for children aged 7-11 years to assist with anxiety. Read More

Comfort kids | Health professionals

Paula Woodward March 21, 2023

Comfort Kids for health Professionals page provides Workshops, lists guidelines and provides further links to a variety of education resources, podcasts and training activities to support professional development and best practice in procedural pain management. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More

CF Smart

Firefly Admin March 21, 2023

CF Smart is a free resource for teachers and educators to improve understanding of CF care in education settings. It includes access to free e-learning about how to support your student with CF in the classroom as well as downloadable resources. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

CFPhysio

Paula Woodward March 21, 2023

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More

CF Source

Firefly Admin March 21, 2023

Information and resources about the science behind CF, how CF affects the body (symptoms) as well as tips on living with CF including daily routine, nutrition, exercise, sleep and travel. This website for consumers and health professionals is provided by Vertex Pharmaceuticals. Read More

Comfort Kids

Paula Woodward March 21, 2023

The Comfort Kids Program provides procedural pain management at the Royal Children's Hospital in Melbourne. The aim is to minimise pain, distress and anxiety associated with medical procedures through a multi-modal approach, combining non-pharmacological and pharmacological interventions. Read More

Travelling with CF

Firefly Admin March 21, 2023

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More