Living Well With Cystic Fibrosis

Archive

Living with CF

Living with CF

An overview of life with CF across the lifespan. Read More

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The First 12 Months

The First 12 Months

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

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CF Standards of Care

CF Standards of Care

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

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The Australian Social Work Clinical Practice Guidelines 2017

The Australian Social Work Clinical Practice Guidelines 2017

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

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Current Treatments

Current Treatments

A brief overview of current CF treatments, from physiotherapy to medications and lung transplant, with a reminder to always discuss treatment options with your healthcare team. Read More

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Life with CF

Life with CF

An brief overview of living with CF from Cystic Fibrosis Australia, with link to CFA's CF Donut health portal. Read More

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CF Baby Steps

CF Baby Steps

CF Baby Steps provides a collection of resources for families of newborn babies following CF diagnosis. It has been developed through collaboration between CFCC, the Royal Children's Hospital and Monash Children's Hospital, in conjunction with parents. It includes articles on a range of topics, parents sharing their experience, and information about emotional support. Read More

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Comfort Kids | Toolkit for families

Comfort Kids | Toolkit for families

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More

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Comfort kids | For kids

Comfort kids | For kids

The Comfort Kids For Kids page includes links to resources websites to help children and their families prepare for hospital procedures and hospital stays. There are also a series of coping activities for children aged 7-11 years to assist with anxiety. Read More

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Comfort kids | Health professionals

Comfort kids | Health professionals

Comfort Kids for health Professionals page provides Workshops, lists guidelines and provides further links to a variety of education resources, podcasts and training activities to support professional development and best practice in procedural pain management. Read More

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