Activities and hobbies

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

The Australian Social Work Clinical Practice Guidelines 2017

Paula Woodward March 21, 2023

Guidelines for Social Work in Cystic Fibrosis, primarily for health professionals but of interest to other people living with CF. These guidelines provide recommendations for social work practice at development stages across the lifespan of CF. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre. These guidelines are accessible to all via the CFStrong website. Read More

Exercise and Sport

Paula Woodward March 21, 2023

Information on fluids in sport and eating and drinking during exercise. Available via CFA's Facts, Figures and Publications page. Read More

CF Source

Firefly Admin March 21, 2023

Information and resources about the science behind CF, how CF affects the body (symptoms) as well as tips on living with CF including daily routine, nutrition, exercise, sleep and travel. This website for consumers and health professionals is provided by Vertex Pharmaceuticals. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Carer Skills – Social Connections

Firefly Admin March 21, 2023

The Carer Gateway has a range of online skills courses to support wellbeing and understanding of legal responsibilities relating to the caring role. This module focuses on the impact of caring on your relationships with others and provides practical tips to increase social connectedness. Each free online self-paced learning modules takes 20–40 minutes to complete and you can download your responses to questions in the module to use as a resource and reminder. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

Travelling with CF

Firefly Admin March 21, 2023

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More

Cystic Fibrosis Foundation (CFF)

Paula Woodward March 21, 2023

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

CF at school

Firefly Admin March 21, 2023

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More