Tertiary educator

CF Smart

Firefly Admin March 21, 2023

CF Smart is a free resource for teachers and educators to improve understanding of CF care in education settings. It includes access to free e-learning about how to support your student with CF in the classroom as well as downloadable resources. Read More

The Australian Centre for Grief and Bereavement

Firefly Admin March 21, 2023

The Australian Centre for Grief and Bereavement provides education, training and services for those working in grief and bereavement as well as support services and a referral service. Read More

National Disability Insurance Agency

Firefly Admin March 21, 2023

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More

Missing School

Paula Woodward March 21, 2023

Missing School aims to keep seriously sick children connected to school through information, research, resources and advocacy. Read More

Cystic Fibrosis Trust

Firefly Admin March 21, 2023

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

ReachOut

Paula Woodward March 21, 2023

ReachOut helps young people access mental health support. They provide online mental health support, peer support, information and resources for young people, parents, carers and teachers. Read More

CF at school

Firefly Admin March 21, 2023

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More

Supporting a family with CF

Firefly Admin March 21, 2023

This CFNZ resource is for friends and family who would like to know some practical and emotional ways to support someone they know with a child with CF. This includes a link to A guide to cystic fibrosis for family, whānau and friends. Read More

Cystic Fibrosis New Zealand (CFNZ)

Firefly Admin March 21, 2023

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More