Living Well With Cystic Fibrosis

Archive

Fact sheet for tertiary educators

Fact sheet for tertiary educators

This information provides an overview of what CF is, how it impacts daily life and information about ongoing management. The aim is to inform educators about CF, and provide ways for individuals and organisations to support students to achieve their education goals. This fact sheet is available via the CFStrong website. Read More

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CFStrong: Study and Career

CFStrong: Study and Career

Information and resources about study and career and CF, available on the CFStrong website. This extensive section includes information for employers, TAFE colleges and universities, as well as shared lived experience, advice and practical tips on navigating study and work. Read More

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CFStrong: Lifestyle

CFStrong: Lifestyle

Information and resources about lifestyle and CF, available on the CFStrong website. This section includes information on hobbies, relationships, school, study, careers and travelling with CF. CFStrong includes stories from people living with CF who share their experience. Read More

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CF Talk

CF Talk

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More

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School and day-care

School and day-care

CFWA provides various factsheets for people with CF, carers, and family. This includes information on going to day-care with CF, starting school, going to high school, exercise and sport in school and school camps (see School and daycare section). Read More

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Medications and Procedures

Medications and Procedures

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

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Living with CF for Young People

Living with CF for Young People

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

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Living with CF for Children

Living with CF for Children

Information about airway clearance, exercise, nutrition, medications and procedures, infection and prevention control, comorbidities and complications, emotional wellbeing, behavioural support, the CF clinic and hospital, school and day-care, travel and general health. Read More

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About CF

About CF

Information about CF genes, how you get CF, symptoms, treatment and infection control. Read More

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Work and CF

Work and CF

This useful article and accompanying factsheet covers some great questions to consider when thinking about employment. This would be a useful prompt to discuss adjustments with a potential employer, and there is a section of information specifically for the employer to understand CF. Read More

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