Living Well With Cystic Fibrosis

Archive

National Disability Insurance Agency

National Disability Insurance Agency

The National Disability Insurance Agency is an independent agency that implements the national Disability Insurance Scheme (NDIS) which provides access to support for those living with a significant, permeant disability in Australia. Read More

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SibChat

SibChat

SibChat is an online community run by, and for, adult siblings of people with disability by Siblings Australia. Read More

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Travelling with CF

Travelling with CF

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More

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Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Western Australia (CFWA)

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

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Cystic Fibrosis Australian Capital Territory (ACT)

Cystic Fibrosis Australian Capital Territory (ACT)

CFACT is the peak body for people living with CF in ACT. They provide supports services that focus on reducing the burden of CF as well as events. Read More

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Trusted Care

Trusted Care

Trusted Care, a subsidiary of Cystic Fibrosis Queensland, is an NDIS provider, supporting to people with CF to allow them to live an ordinary life. Their plan management and support services are available to all Australians who qualify for NDIS support. Read More

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Cystic Fibrosis Trust

Cystic Fibrosis Trust

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

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TLC for Kids

TLC for Kids

TLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More

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Beyond Blue

Beyond Blue

Beyond Blue is an Australian mental health foundation that provides information and support for anxiety, depression and suicide. They have online information and a check in to assess your mental health. They provide free 24/7 access to phone/online counsellors, an online peer support community, and a mental health coaching program. Read More

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Siblings Australia

Siblings Australia

Siblings Australia provides support for siblings of children and adults with disability. They provide information, resources and stories focusing on sibling experiences, roles and practical support. They provide peer support services for siblings and one-on-one support for parents and siblings. They also provide professional education and accreditation. (Note, content is general in nature, not specifically focused on CF). Read More

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