Living Well With Cystic Fibrosis

Archive

Medications and Procedures

Medications and Procedures

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

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Infection Control

Infection Control

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

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LWWCF Insights: Managing Daily Care (Adherence)

LWWCF Insights: Managing Daily Care (Adherence)

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource addresses the topic of maximising adherence to treatment and managing daily care. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

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LWWCF Insights Resources

LWWCF Insights Resources

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

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LWWCF Insights: Defining Living Well with CF

LWWCF Insights: Defining Living Well with CF

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

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LWWCF Insights: Living Well Worksheet

LWWCF Insights: Living Well Worksheet

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

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Carers

Carers

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

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CFPhysio – for healthcare professionals

CFPhysio – for healthcare professionals

Physiotherapy information and learning management system for healthcare professionals working with individuals with CF. Read More

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CFPhysio – for people with CF and caregivers

CFPhysio – for people with CF and caregivers

Information and resources about physiotherapy treatment and management for individuals with CF, parents and caregivers. Read More

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Mental Health and Wellbeing

Mental Health and Wellbeing

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

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