Psychologist

Grief Line

Firefly Admin March 21, 2023

Griefline provides free phone counselling support services to individuals and families who are experiencing loss and grief. They also offer resources, online forums and support groups. Read More

Starlight | Livewire

Firefly Admin March 21, 2023

Livewire is Starlight's program for young people (12-20) living with a serious illness, disability or chronic health condition. Delivered in hospital and online, it aims to connect young people and help them to manage the stress, anxiety and isolation of hospital and serious illness. Read More

Starlight Children’s Foundation

Paula Woodward March 21, 2023

Starlight works alongside clinicians using play, social connection and creativity to support children and young people in hospital to positively change their healthcare experience. Read More

Lifeline

Firefly Admin March 21, 2023

Lifeline is a national charity providing access to 24-hour crisis support and suicide prevention services for all Australians experiencing emotional distress. From the website you can connect in a variety of ways to a trained Crisis Supporter, also there are video stories, and resources. Read More

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

CarerHelp

Paula Woodward March 21, 2023

CarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More

Family planning

Firefly Admin March 21, 2023

A CFNZ guide for family planning for people with CF and their partners, including links to further information about genetics of CF, and support services. Read More

Cystic Fibrosis Australia (CFA)

Firefly Admin March 21, 2023

CFA is the peak consumer body for people living with CF in Australia. They focus on collaborative programmes, research, funding, partnerships and advocacy. CFA encourages cohesion amongst the state and territory bodies, manages the national CF data registry, leads the national research program, conducts a biennial CF conference and supports the quality improvement program. They have useful information about CF, living with CF, and mental health on their website as well as links to CF-Donut (information about CF and comorbidities) and Consumer Connect. Read More

Cystic Fibrosis South Australia (CFSA)

Firefly Admin March 21, 2023

CFSA is the peak body for all people living with CF in South Australia. CFSA provides access to information, support services, advocacy, education and practical support. They also contribute to national research. They have information about CF and living with CF on their website. Read More

Cystic Fibrosis Community Care (CFCC)

Paula Woodward March 21, 2023

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More