Living Well With Cystic Fibrosis

Archive

CFStrong: A Guide for Health Professionals

CFStrong: A Guide for Health Professionals

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Getting the language right

CFStrong: Getting the language right

A health practitioners guide to writing reports, letters, forms, and assessments for the NDIS, available on the CFStrong website. Read More

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CFStrong: Social Wellbeing for Young People

CFStrong: Social Wellbeing for Young People

Information and resources about social health and wellbeing, available on the CFStrong website, including social health, friendships, adolescent and young adult challenges and relationships. Read More

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CFStrong: Mental Wellbeing for Young People

CFStrong: Mental Wellbeing for Young People

Information and resources about mental wellbeing, available on the CFStrong website, including mental health, managing treatments, and self-advocacy. . CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Wellbeing for Young People

CFStrong: Wellbeing for Young People

Information and resources about wellbeing, available on the CFStrong website, including mental and social health, managing treatments, relationships and self-advocacy. CFStrong includes stories from people living with CF who share their experience. Read More

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Infection Control

Infection Control

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

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Medications and Procedures

Medications and Procedures

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

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CFStrong: Changing Clinics

CFStrong: Changing Clinics

Information and resources about changing CF clinics, available on the CFStrong website, including information about transitioning to adult care as well as moving to a new clinic locally interstate or overseas. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Moving to Adult Care

CFStrong: Moving to Adult Care

Information and resources about moving to adult CF care, available on the CFStrong website, including information about what transitioning means, support available, and commonly asked questions. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Psychosocial Wellbeing for Adults

CFStrong: Psychosocial Wellbeing for Adults

Information and resources about psychosocial wellbeing, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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