Pharmacist

CFStrong: A Guide for Health Professionals

Firefly Admin May 8, 2023

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Getting the language right

Firefly Admin May 8, 2023

A health practitioners guide to writing reports, letters, forms, and assessments for the NDIS, available on the CFStrong website. Read More

CFStrong: Psychosocial Wellbeing for Adults

Firefly Admin May 8, 2023

Information and resources about psychosocial wellbeing, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

Medications and Procedures

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

Infection Control

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

Carers

Firefly Admin May 8, 2023

CFWA provides various factsheets for carers, grandparents, partners, siblings and offspring of people with CF (see Carers section), including links to further resources and apps. Read More

Living with CF

Firefly Admin March 21, 2023

An overview of life with CF across the lifespan. Read More

The First 12 Months

Paula Woodward March 21, 2023

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

International Committee for Mental Health in CF Guidelines

Paula Woodward March 21, 2023

International guidelines for best-practice mental health care in CF, published in 2016 by the Intenrational Committee for Mental Health in CF, a partnership between Cystic Fibrosis Foundation and European Cystic Fibrosis Society. Provides consensus statements for screening and treating depression and anxiety. This document is primarily for health professionals but of interest to other people living with CF. Read More

Current Treatments

Firefly Admin March 21, 2023

A brief overview of current CF treatments, from physiotherapy to medications and lung transplant, with a reminder to always discuss treatment options with your healthcare team. Read More