Partner of a person with CF

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Firefly Admin March 21, 2023

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More

Spill

Firefly Admin March 21, 2023

Spill is a sexual health website specifically for young people with CF. It covers topics including puberty, understanding your body, sexual health, sex, fertility and contraception. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Consumer Connect

Paula Woodward March 21, 2023

Consumer Connect is CFA's online platform for people with CF and their support networks to come together for support and knowledge sharing. Registration needed for full access. Read More

CFPhysio

Paula Woodward March 21, 2023

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More

Beam Cystic Fibrosis

Firefly Admin March 21, 2023

Beam is an online resource that provides access to exercise programs tailored to the health needs of people with different health conditions, including a specific program for CF. It includes progressive programs, live and on-demand classes and community and motivational support. Monthly subscription is required after a 2-week free trial. Read More

Lifeline

Firefly Admin March 21, 2023

Lifeline is a national charity providing access to 24-hour crisis support and suicide prevention services for all Australians experiencing emotional distress. From the website you can connect in a variety of ways to a trained Crisis Supporter, also there are video stories, and resources. Read More