Parent of a person with CF

International Committee for Mental Health in CF Guidelines

Paula Woodward March 21, 2023

International guidelines for best-practice mental health care in CF, published in 2016 by the Intenrational Committee for Mental Health in CF, a partnership between Cystic Fibrosis Foundation and European Cystic Fibrosis Society. Provides consensus statements for screening and treating depression and anxiety. This document is primarily for health professionals but of interest to other people living with CF. Read More

The First 12 Months

Paula Woodward March 21, 2023

An overview of CF in the first 12 months of life with CF, and what to expect. Includes a link to The first 12 months handbook. Read More

Living with CF

Firefly Admin March 21, 2023

An overview of life with CF across the lifespan. Read More

What is CF?

Paula Woodward March 21, 2023

Resources on CF symptoms, causes, diagnosis, treatment and genetic testing. Read More

Living with CF for Children

Paula Woodward March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, childcare and preschool, primary school, travel and concessions and benefits. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More

Living with CF for Newly Diagnosed

Paula Woodward March 21, 2023

Information for newly diagnosed families with CF and links to the Baby Steps program for more information. Read More

Living with CF for Carers of Children

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

CF Food and CF Cooking: Guide for Feeding Infants

Firefly Admin March 21, 2023

A guide to nutrition for infants with CF. Read More

CF Food and CF Cooking: Guide for Feeding Children

Firefly Admin March 21, 2023

A guide to nutrition for children with CF. Read More