Nursing staff

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More

CF Baby Steps

Paula Woodward March 21, 2023

CF Baby Steps provides a collection of resources for families of newborn babies following CF diagnosis. It has been developed through collaboration between CFCC, the Royal Children's Hospital and Monash Children's Hospital, in conjunction with parents. It includes articles on a range of topics, parents sharing their experience, and information about emotional support. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Consumer Connect

Paula Woodward March 21, 2023

Consumer Connect is CFA's online platform for people with CF and their support networks to come together for support and knowledge sharing. Registration needed for full access. Read More

CF Source

Firefly Admin March 21, 2023

Information and resources about the science behind CF, how CF affects the body (symptoms) as well as tips on living with CF including daily routine, nutrition, exercise, sleep and travel. This website for consumers and health professionals is provided by Vertex Pharmaceuticals. Read More

Lifeline

Firefly Admin March 21, 2023

Lifeline is a national charity providing access to 24-hour crisis support and suicide prevention services for all Australians experiencing emotional distress. From the website you can connect in a variety of ways to a trained Crisis Supporter, also there are video stories, and resources. Read More

Starlight Children’s Foundation

Paula Woodward March 21, 2023

Starlight works alongside clinicians using play, social connection and creativity to support children and young people in hospital to positively change their healthcare experience. Read More

Starlight | Livewire

Firefly Admin March 21, 2023

Livewire is Starlight's program for young people (12-20) living with a serious illness, disability or chronic health condition. Delivered in hospital and online, it aims to connect young people and help them to manage the stress, anxiety and isolation of hospital and serious illness. Read More

Australian Human Rights Commission

Firefly Admin March 21, 2023

Information on human rights in Australia including children's rights, disability rights, rights for diverse community and health and workplace rights. Read More