Living Well With Cystic Fibrosis

Archive

CF Diagnosis

CF Diagnosis

Information about newborn screening, sweat testing, late diagnosis, supports and other useful resources. Read More

Read More
Genetic Carrier Screening

Genetic Carrier Screening

Information about carrier screening, what it is and useful contacts. Read More

Read More
Living with CF for Newborns

Living with CF for Newborns

Information about services, managing CF, the CF clinic and hospital airway clearance, the digestive system and nutrition, medications and procedures, infection and prevention control, emotional wellbeing, day care and summer and CF. Read More

Read More
Living with CF for Children

Living with CF for Children

Information about airway clearance, exercise, nutrition, medications and procedures, infection and prevention control, comorbidities and complications, emotional wellbeing, behavioural support, the CF clinic and hospital, school and day-care, travel and general health. Read More

Read More
Living with CF for Young People

Living with CF for Young People

Information about managing CF, airway clearance, exercise, nutrition, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, emotional wellbeing, sexual health, school and work and travel. Read More

Read More
Living with CF for Adults

Living with CF for Adults

Information about airway clearance, exercise, nutrition, emotional wellbeing, medications and procedures, comorbidities and complications, infection and prevention control, hospital support, fertility and parenting with CF, employment and travel. Read More

Read More
Carrier Screening and Diagnosis

Carrier Screening and Diagnosis

Factsheets on carrier screening and sweat testing. Read More

Read More
CF Standards of Care

CF Standards of Care

The CF Standards of Care guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Developed by the Australian Cystic Fibrosis Social Work Interest Group, published in on the Cystic Fibrosis Australia website. These guidelines are currently being updated in 2023. Read More

Read More
CF Nutrition Guidelines ANZ

CF Nutrition Guidelines ANZ

CF Nutrition Guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Published on the websites of Cystic Fibrosis Australia, Cystic Fibrosis NZ and Thoracic Society of Australia and New Zealand in 2021. Read More

Read More
International Committee for Mental Health in CF Guidelines

International Committee for Mental Health in CF Guidelines

International guidelines for best-practice mental health care in CF, published in 2016 by the Intenrational Committee for Mental Health in CF, a partnership between Cystic Fibrosis Foundation and European Cystic Fibrosis Society. Provides consensus statements for screening and treating depression and anxiety. This document is primarily for health professionals but of interest to other people living with CF. Read More

Read More